#RallyKid Dyran


Rally Kid Dyran's Story
Our 7yr old son was diagnosed with stage 4 high risk neuroblastoma in April 2023 when he was just years 4 yrs old. Since then he has undergone 6 rounds of chemotherapy, a 14 hr surgery to resect the cancerous mass (in which he lost his right adrenal gland and right kidney as well) followed by stem cell transplant in the fall of 2023. The stem cell transplant was really hard on him and he ended up getting a small bowel obstruction that required 4 surgeries to correct in an 2 week period all while he was neutropenic. We spent a month in icu and 2 months overall in the hospital (including Halloween 😢). My son almost died. He has undergone 12 sessions of radiation over Christmas 2023 and 6 rounds of immunotherapy treatments last spring. He completed another bowel surgery in April 2024 to reverse his ileostomy. He took an oral chemotherapy pill to try and keep the cancer from returning. That was a clinical trial that we participated in with hopes of helping him and future children diagnosed with neuroblastoma. He did blood work monthly and scans every 3 months. While participating in the trial with no port, so it was a lot of sticks for a little guy. We are currently doing scans every 6 months with visits to check his heart, lungs, and hearing in between. He is treated 3 hrs from home at Vanderbilt so travel expenses for weekly visits are extensive. We are currently dealing with ALL the aftermath from his extensive treatment plan including permanent hearing loss (he wears hearing aids), severe medical ptsd, difficulty regulating his emotions, along with physical and emotional delay.
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Every day, kids are diagnosed with cancers that still have no cure — and treatments that haven’t changed in decades. Rally steps in where traditional funding often doesn’t, providing philanthropic seed funding for bold, early-stage research with the greatest potential to save lives.
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